Friday, July 17, 2015

One Week Later

Greetings Friends and Family,  

Ebby, Sareana, and Nicola

My, oh my, how much has transpired since the last time I wrote. For one, I had brain surgery a week ago today. I’ve had tears of sadness, tears of joy, felt pain, had plenty of pain-relieving drugs, felt much anguish and worry, slept quite a lot, taken deep breaths, breaths of anticipation, and breaths of relief. I made it through part one of this long, arduous process. Good on me, but the fight isn’t over-- not by a long shot.

On the morning of my surgery, it felt strange to walk into a hospital feeling perfectly healthy, having biked a tough ride the previous day with Erin, yet at 3:30am tearfully kissing my kids’ foreheads as they slept so soundly to say goodbye. My check-in time at the hospital was 5:45am, but despite the early check-in Erin and I decided to stay in Fort Collins knowing we wouldn’t get a wink of sleep anyway. When we arrived at the pre-surgery check in area in Denver I started doing exercises to psych myself up. I lunged, did push-ups, jumped up and down, stretched, loosened up my neck back and forth, did a yoga pose or two. I’m sure it looked like I was getting ready for a fight, which wasn’t all that far from the truth.  I’m sure the other patients or caregivers sitting in the waiting room watching me wondered what the heck is she doing, but at that point I didn’t care. My focus was knowing that at any second I would be called in to the inpatient prep room and begin the fight of my life.

First, I put on a one-size only fashionable hospital gown, which immediately identifies one as a patient. Next, the resident doc came in to begin prepping me for surgery even though surgery wouldn’t begin until hours later. She put markers all over my head, which she explained would help guide docs during surgery to keep my head in place. About five blue/black markers that looked like eyeballs were attached close to my hairline of my forehead, which I believe made me look like an alien and other markers were put on my skull in various places. She had to shave small swaths of hair in order for them to stick. She put dark circles around all the markers in case they became detached, which added to the attractiveness of my ensemble. Next, they rolled me off to get an MRI where they’d have an up-to-date brain scan prior to surgery. Many hours later I’d have another MRI scan right after surgery as well. Following the pre-op scan I returned to the prep room to be greeted by Erin and my parents, who were happy to see me although naturally a bit taken aback by the markers on my face. Prior to surgery we were visited by a myriad of doctors, nurses and finally the anesthesiologist. We confirmed that I would have a lumbar puncture (spinal tap) prior to my brain surgery to ensure that no cancer cells had metastasized to my spine. Having had a spinal tap once before in 2008, I was happy to be under anesthesia this time around. The anesthesiologist wheeled me back to the operating room and before we arrived I was “asleep.”

When I woke up in the post-surgery recovery area all I saw were smiling faces of my family. It was pretty awesome to be on the other side of surgery, have all my faculties functioning, my mind working, and part one complete. I spent four nights in the hospital, which wasn’t too terrible because it allowed me to get the rest I needed and learn how to best manage my pain. Once cords, catheters, IVs and nodes were removed I started to feel like a real person again. I eventually retired the hospital gown for a more fashionable look thanks to my sister and started to go on twice daily walks around the floor escorted by a family member or nurse. The first day’s goal was one lap and by the time I left I could run a lap (only kidding). Though I wasn’t breaking any records, at least I was up and moving around. I truly believe that being healthy and fit before surgery has helped speed up my recovery process. Physically I am pretty beat, but I'm doing well all things considered and my stamina increases daily. 

I also got a much-needed visit from Alex and Dean on Sunday who were so happy to see me, and I them; they offered the kind of medicine no one can prescribe. On Tuesday, I was released from the hospital and decided to spend one extra night in Denver at a condo of my mom’s friend who graciously offered her space. My parents, Nicola and I all agreed how special it was for the nuclear Pinson family to be together, a rarity anymore (Erin had gone back to Fort Collins to be with the boys). We took a walk around our old neighborhood elementary school and reminisced about how so much has changed since we were little girls.



Though pathology has not yet been released, the wheels are already turning as to where/when I might start treatment. We are considering a number of different options and will eventually choose the best course of action for my particular case. This may involve traveling to a few different hospitals in the next few weeks to meet with doctors in person. No matter what the outcome, it’s most likely treatment will begin in three or four weeks. This gives me a little recovery time and time to be home with my boys who have been extra sweet to their mama. I’ll give you two examples: Alex gave me a big hug when I got home and said, “Mom, I’m so happy to see you, I love you to the moon and back.” Putting Dean down for bed the first night I was home I began to quietly cry in the dark because I was just so happy to be there. Dean got out of bed and said, “Mom, why are you crying?” I told him I was happy to be home. I asked him what I should do to stop crying. He said in a whisper, “Wipe your tears and take a deep breath. It'll be okay.” How is it that a seven and three-year old can understand human nature so well despite their complete innocence to the pain their mother is going through? They are so precious. I’m one lucky mama!

With these last few words I want to thank all of you who have reached out to offer support and love during this time. My family and I truly appreciate it. This is not just my journey, but all of ours and we have to stay strong to get through this together. I wish I could respond to each of you individually, but hopefully you know that I am thinking of you, too. I’m glad my blog helps keep us connected. Until next time when I have more information to share...be well.

Love,
Sareana
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